Supporting Improved Clinical Decision Making in Severe Traumatic Brain Injury (SUPPORT CDEs)
This project aims to improve the precision of the Coma Recovery Scale-Revised (CRS-R) and define states of consciousness in patients with disorders of consciousness (DoC) resulting from severe brain injuries. The goal is to develop a clinical decision support tool that can assist in making better clinical decisions for these patients. This project will facilitate the development of a clinical research study protocol.
The project involves four key steps:
- Analyzing data from traumatic brain injury databases to establish measurable changes in CRS-R scores
- Examining diagnostic cut-points for different states of DoC
- Evaluating neurobehavioral outcomes and identifying recovery trajectories
- Engaging stakeholders to ensure access to patients for future research
Collaborators: Alison Cogan, PhD; James Graham, PhD; Stephen Aichele, PhD; Katherine O’Brien, PhD; Joseph Giacino, PhD; Trisha Kot (Care Partner); Paige Ford (Care Partner); Trudy Mallinson, PhD
Funding Source: United States Department of Defense
Identifying Implementation Strategies to Facilitate Adoption of a Recovery Ruler in Clinical Practice
The goal of the proposed research is to identify implementation strategies to facilitate occupational therapy practitioner adoption of the Recovery Ruler. The Recovery Ruler is a tool that visually represents scores on the Coma Recovery Scale – Revised (CRSR). Using patient-centered measurement principles, the Recovery Ruler provides comprehensible, timely, and transparent information for caregivers of persons with disorders of consciousness (DoC). The present study has three aims:
- Adapt the Recovery Ruler for use at four DoC programs
- Evaluate implementation outcomes of the Recovery Ruler at four DoC programs (acceptability, appropriateness, feasibility, and adoption)
- Create an implementation strategy matrix to facilitate future adoption
Collaborators: Katherine O’Brien, PhD; Kelsey Watters, CScD; Kristen Sheau, OTD; Kaitlin Hays DPT; Candy Tefertiller, PhD; Trisha Kot (Care Partner); Paige Ford (Care Partner); Alison McGuire, MA; Trudy Mallinson, PhD
Funding Source: American Occupational Therapy Foundation
Developing a Standardized Process Assessment for Relationship-Centered Shared Decision Making
The goal of this project is to develop a relationship-based model for shared decision-making that is specific to triads. The triad includes the practitioner, the patient that cannot advocate for themselves, and their care partner.
Funding Source: Agency for Healthcare Research and Quality
Principal Investigators: Trudy Mallinson at GWU and Christina Papadimitriou at Oakland University